Autosomal recessive polycystic kidney disease (ARPKD) is a rare genetic disorder occurring in approximately 1 in 20,000 children. It affects boys and girls equally and can cause death in the first month of life. If a child with ARPKD survives the newborn period, the chances of survival are good. For these children, approximately one-third will need dialysis or transplantation by the age of 10. Learn basic facts about what ARPKD is, how it impacts people and how the PKD Foundation helps.
Dr. Ronald Perrone explains total kidney volume (TKV), what it indicates, measurement methods, and selecting the right provider.