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Living with PKD
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Recent Resources

  • Latest discoveries in ADPKD genetics
    Understanding PKD

    • What is the database and what are we learning from it?

  • Human PKD kidney donation
    ADPKDLiving With PKDTransplantationUnderstanding PKD

    • What happens once your surgical team removes your kidneys and ships them off to the research lab? Learn how PKD kidney donation can help us #endPKD.

  • What is Total Kidney Volume (TKV) and Why is it Important to Me?
    ADPKDARPKDLiving With PKDUnderstanding PKD

    • Dr. Ronald Perrone explains total kidney volume (TKV), what it indicates, measurement methods, and selecting the right provider.

  • ADPKD Registry Annual Report 2021
    ADPKDARPKDDialysisLiving With PKDPKD in ChildrenTransplantationUnderstanding PKD

    • The ADPKD Registry was launched in September 2019. It is the first nationwide, patient-reported database for ADPKD, and so far over 1,900 people have signed up!
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