• Latest discoveries in ADPKD genetics
    Understanding PKD

    • What is the database and what are we learning from it?

  • Human PKD kidney donation
    ADPKDLiving With PKDTransplantationUnderstanding PKD

    • What happens once your surgical team removes your kidneys and ships them off to the research lab? Learn how PKD kidney donation can help us #endPKD.

  • What is Total Kidney Volume (TKV) and Why is it Important to Me?
    ADPKDARPKDLiving With PKDUnderstanding PKD

    • Dr. Ronald Perrone explains total kidney volume (TKV), what it indicates, measurement methods, and selecting the right provider.

  • ADPKD Registry Annual Report 2021
    ADPKDARPKDDialysisLiving With PKDPKD in ChildrenTransplantationUnderstanding PKD

    • The ADPKD Registry was launched in September 2019. It is the first nationwide, patient-reported database for ADPKD, and so far over 1,900 people have signed up!

  • ADPKD Registry Annual Report 2021: What We’re Learning from Participants
    ADPKDDialysisLiving With PKDPKD in ChildrenTransplantationUnderstanding PKD

    • Elise Hoover highlights the "ADPKD Registry Annual Report 2021" to share what we’re learning about ADPKD from Registry participant responses.

  • About PKD / About PKD Foundation
    ADPKDARPKDUnderstanding PKD

    • Learn basic information about PKD and the PKD Foundation.

  • ARPKD Outside the Kidneys: Aneurysms and Liver Disease
    ARPKDLiving With PKDPKD in ChildrenUnderstanding PKD

    • Dr. Erum Hartung updates on her "Aneurysms in ARPKD" study (begun August 2021): current enrollment, what she hopes to learn.

  • Manual para pacientes con ERPAD: Entender y vivir con la enfermedad renal poliquística autosómica dominante
    ADPKDLiving With PKDUnderstanding PKD

    • El propósito de este manual es proporcionar información sobre la enfermedad renal poliquística autosómica dominante (ERPAD).

  • KETO-PKD Study
    Living With PKDUnderstanding PKD

    • How's enrollment going in the study (started in October 2020) and what's the evidence behind this intervention?

  • Understanding Lab Results
    Living With PKDUnderstanding PKD

    • Labs provide you and your doctor with valuable information about your overall health and your kidney function. It is important to understand the labs that your doctor requests, track your results, and know when specific labs are or are not within the normal range.
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