Naked in the Middle of A Tornado: The True Story of One Family’s Inspiring Fight Against Polycystic Kidney Disease (PKD)

Living with PKD
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As Rob Herman likes to say, “It’s like being naked in the middle of a tornado, with all this stuff flying at you, with nothing to hold onto but each...

As Rob Herman likes to say, “It’s like being naked in the middle of a tornado, with all this stuff flying at you, with nothing to hold onto but each other.”

Discover how much one person, one family, can take and still prosper!

What hurts more? The physical pain of a rupturing colon; maybe needles in the webbing between your toes; or a drilling feeling in the side of your head? Or the psychological torment of watching your mom become a “vegetable”; maybe your young child needing brain surgery, or losing a precious baby?

It’s been almost 100 years since the Herman’s first reached their goal of coming to America. Since then, there has been four generations of struggle, pain, and loss. Those pains encountered along their varying paths of life are numerous, almost unfairly numerous. Experience their day to day, and year by year, personal challenges – both physically and mentally – but also their rewards, as they live a motto of:  Never Give In!

Available for purchase on Amazon.

Rob Herman can be reached at: NakedintheMiddleofaTornado@gmail.com

Related Resources

ADPKD Registry Annual Report 2021: What We’re Learning from Participants

ADPKD Registry Annual Report 2021: What We’re Learning from Participants

The ADPKD Registry was launched in September 2019. It is the first nationwide, patient-reported database for ADPKD, and so far over 2,300 people have signed up! By completing our modules, participants are providing valuable insights on ADPKD, diet and lifestyle, quality of life, living with liver cysts, family history, and pain. Each year, we plan to produce an annual report to share with you what we’re learning from participant responses to these modules.

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