ADPKD Registry Annual Report 2021
ADPKD Registry Annual Report 2021
Learn more Want to learn more about the ADPKD...
Learn more Want to learn more about the ADPKD...
The ADPKD Registry was launched in September 2019. It is the first nationwide, patient-reported database for ADPKD, and so far over 2,300 people have signed up! By completing our modules, participants are providing valuable insights on ADPKD, diet and lifestyle, quality of life, living with liver cysts, family history, and pain. Each year, we plan to produce an annual report to share with you what we’re learning from participant responses to these modules.
Tuesday, December 1, 2021 | 11 a.m. CST
Dr. Roman-Ulrich Müller of University Hospital Cologne gives an update on the KETO-PKD Study (begun Oct. 2020).