The PKDF Research team is excited to expand the features available in the ADPKD Registry in summer 2023. This project has been carefully planned and executed with our patients at the center. The last few years have been spent building the largest ADPKD patient-reported outcomes dataset.
With PKD Connect, no one faces PKD alone. In this brochure, learn about resources available, like the Peer Mentor Program, the ADPKD Registry, the PKD Hope Line, and information to navigate a PKD diagnosis and manage living with the disease.
Thursday, June 23 6 to 7 p.m. CDT Friday, June 24 2 to 3 p.m. CDT 4 to 4:45 p.m. CDT Breakout sessions English Español English Español English Español English Español English Español 5 to 5:45 p.m. CDT Breakout sessions English Español English Español English Español English Español English...
