Recorded on March 25, 2017

This webinar from Lisa King, RN, CCTC and Margo Vandrovec, MSW, LICSW, CCTSW was originally part of an exclusive, online education conference, “What’s New in PKD: A Day of Learning” held on March 25, 2017. The event featured PKD experts from Mayo Clinic in Rochester, Minn., discussing the kidney transplant process for PKD patients.

Lisa King’s slides
Margo Vandrovec’s slides

Related Resources

ADPKD Registry Annual Report 2021: What We’re Learning from Participants

ADPKD Registry Annual Report 2021: What We’re Learning from Participants

The ADPKD Registry was launched in September 2019. It is the first nationwide, patient-reported database for ADPKD, and so far over 2,300 people have signed up! By completing our modules, participants are providing valuable insights on ADPKD, diet and lifestyle, quality of life, living with liver cysts, family history, and pain. Each year, we plan to produce an annual report to share with you what we’re learning from participant responses to these modules.

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