Significant dollars are spent to train and place a single service member; this investment is finally starting to pay off just as PKD begins to take hold, effectively grounding the individual and, in some cases, ending their military career.
An effective treatment or cure for PKD would not only save PKD patients from the pain and suffering caused by the disease, it would allow affected service members to stay in active duty, serving their country for the entirety of their careers.
What to Expect from the ARPKD EL-PFDD Meeting On August 29, 2023 the PKD Foundation will hold its first ever Externally Led Patient-focused Drug Development (EL-PFDD) Meeting on Autosomal Recessive PKD (ARPKD) and Congenital Hepatic Fibrosis (CHF). Should you attend the meeting? What should you...
The PKDF Research team is excited to expand the features available in the ADPKD Registry in summer 2023. This project has been carefully planned and executed with our patients at the center. The last few years have been spent building the largest ADPKD patient-reported outcomes dataset.
Registry Annual Impact Report Webinar The ADPKD Registry is the first nationwide, patient-reported database for ADPKD, and so far over 2,700 people have signed up! This report highlights WHERE and HOW the ADPKD Registry data has been used since its inception in 2019, gives a sneak peek at the...
