Want to learn more about the ADPKD Registry?
The PKDF Research team is excited to expand the features available in the ADPKD Registry in summer 2023. This project has been carefully planned and executed with our patients at the center. The last few years have been spent building the largest ADPKD patient-reported outcomes dataset.
Registry Annual Impact Report Webinar The ADPKD Registry is the first nationwide, patient-reported database for ADPKD, and so far over 2,700 people have signed up! This report highlights WHERE and HOW the ADPKD Registry data has been used since its inception in 2019, gives a sneak peek at the...
DOD's PRMRP PKD grant opportunities Join Dr. Cecilia Dupecher and the PKD Foundation on March 21 @ 12pm CST for a webinar on the DOD’s PRMRP PKD grant opportunities! This informational webinar will be aimed at PKD researchers and will review the relevant funding opportunities and tips on how to...
