About PKD / My story

Living with PKD
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Polycystic kidney disease (PKD) is a chronic, genetic disease causing
uncontrolled growth of fluid-filled cysts in the kidneys, often leading
to kidney failure. It affects all racial and ethnic groups equally.

Related Resources

ADPKD Registry Annual Report 2022

ADPKD Registry Annual Report 2022

The PKDF Research team is excited to expand the features available in the ADPKD Registry in summer 2023. This project has been carefully planned and executed with our patients at the center. The last few years have been spent building the largest ADPKD patient-reported outcomes dataset.