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  • ABOUT
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  • ADPKD Registry Annual Report 2021: What We’re Learning from Participants
    ADPKDDialysisLiving With PKDPKD in ChildrenTransplantationUnderstanding PKD

    • Elise Hoover highlights the "ADPKD Registry Annual Report 2021" to share what we’re learning about ADPKD from Registry participant responses.
  • KETO-PKD Study
    Living With PKDUnderstanding PKD

    • How's enrollment going in the study (started in October 2020) and what's the evidence behind this intervention?
  • Cooking Well: Delicious, everyday recipes for the PKD family
    ADPKDLiving With PKDUnderstanding PKD

    • Author Jacob Taylor, Ph.D., RD, LD writes that “this cookbook provides those with PKD, who are looking to play an active role in their disease, a helpful hand in understanding how to change their diet, with recipes to suit.”
  • Managing nutrition as dietary needs change from pre-dialysis to post transplant
    Transplantation

    • This is part of a video series from PKDCON 2021
  • Latest Research on Nutrition, Metabolism and Diet in ADPKD
    Living With PKD

    • This is part of a video series from PKDCON 2021
  • PKDCON Follow Up — Your Questions Answered
    Understanding PKD

    • In this webinar, participants who attended PKDCON 2021 had the opportunity to ask industry professionals follow-up questions to the education event.
  • Nutritional Considerations for PKD Patients
    ADPKDARPKDLiving With PKDPKD in ChildrenUnderstanding PKD

    • In this session, we will learn the basics of a healthy diet to protect kidneys. We will also take a look into popular diets including plant based, low-carb, paleo, etc., and what you need to know to make sure your diet is meeting your dietary needs.
  • ADPKD Registry Annual Report 2020
    ADPKDARPKDDialysisLiving With PKDPKD in ChildrenTransplantationUnderstanding PKD

    • The ADPKD Registry was launched in September 2019. It is the first nationwide, patient-reported database for ADPKD, and so far over 1,900 people have signed up!
  • ADPKD Registry — Find out what we’re learning in our first Annual Report
    ADPKDARPKDDialysisLiving With PKDPKD in ChildrenTransplantationUnderstanding PKD

    • The ADPKD Registry was launched in September 2019. It is the first nationwide, patient-reported database for ADPKD, and so far over 1,900 people have signed up!
  • Treating polycystic kidney disease: Could diet be the key?
    ADPKDLiving With PKD

    • Thomas Weimbs, Ph.D., University of California Santa Barbara, and his research team have discovered that diets that induce ketosis in mouse, rat and cat models slowed or reversed the growth of polycystic kidneys. Could this research be the key to slowing progression of PKD in humans? In this webinar, Weimbs discusses his research. He is joined by Neera Dahl, M.D., Ph.D., Yale University School of Medicine, to provide context for Dr. Weimbs's new findings and give a physician’s perspective. Recorded December 10, 2019 | 7 p.m. CT
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