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Latest discoveries in ADPKD genetics
Understanding PKD- What is the database and what are we learning from it?
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Human PKD kidney donation
ADPKDLiving With PKDTransplantationUnderstanding PKD- What happens once your surgical team removes your kidneys and ships them off to the research lab? Learn how PKD kidney donation can help us #endPKD.
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PRMRP funding for PKD research
Understanding PKD- Join Dr. Cecilia Dupecher and the PKD Foundation on March 21 @ 12pm CST for a webinar on the DOD’s PRMRP PKD grant opportunities! This informational webinar will be aimed at PKD researchers and will review the relevant funding opportunities and tips on how to apply.
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PKD Connect: A community of care
ADPKDARPKDDialysisLiving With PKDPKD in ChildrenTransplantationUnderstanding PKD- Anywhere
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PKDCON 2022 session recordings
PKDCON- Anywhere
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Introduction to PKD: What should I know about PKD?
Understanding PKD- This educational session will provide an overview of PKD and its impact. Topics include the different forms of PKD, available treatments and how to manage the disease.
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Cardiovascular Issues in ADPKD
ADPKDLiving With PKDPKDCONUnderstanding PKD- Anywhere
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What is Total Kidney Volume (TKV) and Why is it Important to Me?
ADPKDARPKDLiving With PKDUnderstanding PKD- Dr. Ronald Perrone explains total kidney volume (TKV), what it indicates, measurement methods, and selecting the right provider.
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ADPKD Registry Annual Report 2021
ADPKDARPKDDialysisLiving With PKDPKD in ChildrenTransplantationUnderstanding PKD- The ADPKD Registry was launched in September 2019. It is the first nationwide, patient-reported database for ADPKD, and so far over 1,900 people have signed up!
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ADPKD Registry Annual Report 2021: What We’re Learning from Participants
ADPKDDialysisLiving With PKDPKD in ChildrenTransplantationUnderstanding PKD- Elise Hoover highlights the "ADPKD Registry Annual Report 2021" to share what we’re learning about ADPKD from Registry participant responses.