PKDF Five-year summary: Support of research for PKD in children

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This info sheet provides a summary of the work done by PKDF from 2016 to 2021 in funding or otherwise supporting research for PKD in children.

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PKDF has invested over $2 million since 2006 for research, support, education and awareness for ARPKD, ADPKD in children, and congenital hepatic fibrosis (CHF), a disease closely associated with ARPKD.

This info sheet provides a summary of the work done by PKDF from 2016 to 2021 in funding or otherwise supporting research for PKD in children.

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Related Resources

ADPKD Registry Annual Report 2021: What We’re Learning from Participants

ADPKD Registry Annual Report 2021: What We’re Learning from Participants

The ADPKD Registry was launched in September 2019. It is the first nationwide, patient-reported database for ADPKD, and so far over 2,300 people have signed up! By completing our modules, participants are providing valuable insights on ADPKD, diet and lifestyle, quality of life, living with liver cysts, family history, and pain. Each year, we plan to produce an annual report to share with you what we’re learning from participant responses to these modules.

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